Ezra goes to physical therapy twice a week. He loves his therapist, Amber (who cannot be pictured for legal reasons) and all the new toys he gets to discover there. Amber works him pretty hard and we have seen such incredible improvement. Here he is on "tall knees" which activates his butt muscles - needed for standing one day. Because of the all work, Ez has mastered the army crawl and has gotten really good at a "bunny hop" sort of crawl. So he's really moving well around the house - even managing to chase after the "titties" (a.k.a. kitties)
He is getting better and better at climbing stairs. He doesn't get to practice this at home though, since we have none. He is VERY good at coming down the stairs backwards, very cautiously. In this second picture, you can see he gets a little distracted sometimes by other kids in the room. He always needs to know what's going on!
And here he is ready for one of his favorite activities - the mobile standing frame. He loves zooming around the room, saying hi to everyone and getting into all the toys.
He is getting better and better at climbing stairs. He doesn't get to practice this at home though, since we have none. He is VERY good at coming down the stairs backwards, very cautiously. In this second picture, you can see he gets a little distracted sometimes by other kids in the room. He always needs to know what's going on!
And here he is ready for one of his favorite activities - the mobile standing frame. He loves zooming around the room, saying hi to everyone and getting into all the toys. Because he was doing so well with this, we started looking into wheelchairs for him. I came across the ZipZac chair - a small chair created by hand for a little boy with Spina Bifuda. His uncle, the creator of the chair is selling them. So we ordered one for Ez. You can see that it fits him perfectly, and really gives him freedom of movement, especially outside (it's not really meant for outside, but our courtyard doesn't count). It allows him to get into the stuff he wants to get into.
And now he's able to play ball outside with his girlfriend!
And now he's able to play ball outside with his girlfriend! We are so proud of him and all the progress he is making. I have the time to post right now because he is actually in surgery - he had surgery on his spine to prevent tethering, as well as a muscle biopsy, two more tenotomies on his achilles tendons, and a lengthening of a tendon in his hip. I just heard from the second surgeon, saying everything went great and he'll be waking up in about an hour. So I'm gonna run and get a coffee so I can make it through the rest of the day. (yes, I drink coffee from time to time in pregnancy and I don't want to hear your opinion on it :) )
5 comments:
Great pictures Kendra! We're so proud of him too (AND his parents!). Sounds like he's doing great. We're thinking of you today and hope the surgery is successful!
Aunt Lottie
Kendra, I wonder if you might email me. My name is Amanda, and I believe we met at the MANA conference in 2007. My email address is amanda.mannromey@gmail.com. I had some questions for you.
By the way, I apologize for the intrusion into your blog, but I did enjoy reading your words and thoughts. And your son is amazingly adorable.
yeah mr ezra! and yeah to you for drinking coffee while pregnant! i lift my mug of coffee to thee ;) thinking bout you guys and praying for recovery. love ya and talk to you soon!
Praying for you all! He is such a big boy and I am sure he can get into things without his new wheels! Let us know how things went! Miss you all!
We are certainly praying for Ezra and hope that he recovers quickly from this surgery. I'm sure there will be a few rough days in there! It sounds like a lot procedures for such a little guy! I love the little Zip Zac chair you ordered for him! How wonderful that he can get around more now. What a sweet little boy!
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